Caregiver advice, support and expert assistance.
Diagnostic Testing for PWS:
IPWSO provides FREE diagnostic testing for PWS on mailed blood spots for those who don’t have access to testing or cannot afford it.
Professional Providers and Caregivers Board develops and publishes best practice standards for residential management of adults with PWS
Information for Families, Physicians and Caregivers available on line:
- Educational documents in multiple languages
- Abstracts of latest research articles
- Documents from IPWSO-supported conferences for scientists or caregivers
- Information on local associations and contacts in 105 countries
FamCare (Family Care Committee) develops educational materials for families caring for adult children at home.
Availability of experts to answer questions.