WHAT WE ARE ALL ABOUT
Friends of IPWSO is a United States nonprofit committed to raising funds to help those who have Prader-Willi syndrome living throughout the world.
Prader-Willi syndrome is a rare genetic syndrome whose most distinctive characteristic is an inability to feel full.
This syndrome presents a huge challenge to the children and adults who have PWS and their families. Friends of IPWSO improves the lives of the global PWS community by funding IPWSO’s family support, educational and scientific networking activities.
Family Support
Caregiver advice, support and expert assistance. Continue reading “Family Support”
Education
Translation, dissemination, and creation of abstracts, research, and learnings for caregivers, local chapters, and medical professionals.
Continue reading “Education”
Scientific Network Activities
Develops medical guidelines, disseminates latest research developments, and hosts medical & scientific networking opportunities. Continue reading “Scientific Network Activities”